ABOUT

In February 2017 I was diagnosed with the genetic heart condition Arrhythmogenic Right Ventricular Cardiomyopathy. (ARVC)

 

This was a real bolt out of the blue.  I was 34 years old I had always looked after myself, exercised regularly, I had a good diet and I've never had any other health issues.

As far as I knew nobody in my family had any heart problems or had died young. It was a bit of a mystery.

However I quickly understood that I was incredibly lucky to be alive as 80% of cases like mine are found post-mortem. 

 

When I started to research my condition what became apparent was that there was a lot of uncertainty around it. It is quite a rare condition affecting between 1 in 10,000 people and because of that they are still learning about it. It affects each individual differently.

Often when things are unclear it can leave us feeling a bit lost and isolated. I was very aware that this, along with the internal defibrillator (ICD) implanted in my chest can lead to anxiety and depression. Which is what made me immediately want to speak out about it and ultimately help others going through the same.

Talking is the first step. So please check out my blog and videos and by all means contact me if you want to chat or share your story.

As an actress my natural response was to develop a play out of this.  to raise awareness - potentially help save lives and to give comfort and hope to others.

 

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