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Performing at Edinburgh Festival with ARVC

Almost 19 months on from my diagnosis and life is seemingly the most back to normal it has been. I have just returned from performing at Edinburgh festival, like I have done almost every year since 2007. But, this year was different as my life is now different and I had to adapt accordingly. Edinburgh Festival is a beast, a marathon of sorts and it has it’s own set of rules for survival for every performer (I just had to notch mine up a gear as I was now dealing with a heart condition and the side effects of medication on top of that), so no late nights or booze for me this year and a lot more Ubers!. When you are diagnosed with a disease out of the blue, I'd say the main thing you are deali

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